Trusting yourself

My favourite ever life quote - literally is the story of my life!

Today was Ben's re-assessment at Child Development Service but unfortunately he wouldn't comply and we couldn't do the assessment.  He wouldn't settle - anxiety through the roof! and  nothing could bring him out of it.  This is typical Fragile X anxiety - same as Michael had.

This made me realise that my plan for him regarding medication is the right decision because when I told one of his carers yesterday this was my plan, I felt her displeasure and she went on to tell me how well he did the last week in an unfamiliar environment.  She meant well, but then I started to question myself, my decision.

It is never an easy decision to put your child on medication.  You feel guilt for some reason - even when it goes really well.  The guilt still stays there a little bit.

However, with the way today went, I know that I am making the right decision.

As Chris from CDS said - You have to TRUST yourself.

Wise words from a wise lady.

Rhys' assessment was last week.  It went brilliantly - he was such a good boy and really enjoyed the process.

He has been diagnosed with Autism and mild intellectual disability.

I kind of knew that this may be coming, so it wasn't a massive shock.  He will now have further genetic testing, just in case (he has only ever been tested for Fragile X genetically).  We now will get funding YAY!  

It will be ok.

I also met with the new paed who I really liked.  She was very good with the boys and I will have a review with her in 6 weeks for Rhys.  Michael and Ben will be in 6 months with a follow up call to see how Ben is going on the meds.

Now we have to wait for another appointment with CDS - after Ben has been on his medication for a while so it starts working. I have a strategy up my sleeve that I hope will give us a better outcome.  Fingers crossed! 

This year is just full on!  But how else could my life ever be :-)

And I'm going to trust myself more too.