I'm still here.............

Oh my goodness, it has been a very busy couple of weeks and blogging went to the wayside.

I attended a Fragile X conference which was interesting and lovely to catch up with some people that I hadn't seen for a long time.  There is some interesting progress in research regarding carriers of FX (of which I am one, plus others in my family) but unfortunately I think solving the FXS issue is still too far advanced for the scientists at the moment.  

Fragile X Conference

I also had a call from our Geneticist too to say that a researcher has discovered some "thing" in the boys Fragile X gene and apparently it is new and exciting and he has written a paper on it, will be presenting his paper at a Fragile X conference in the USA and it may hold some sort of key to something...............???  Anyway, I am meeting with him later in the year to discuss further.

Ben helping me with the watering

At least someone has possibly found something good in all the shite of Fragile X.  Unfortunately, it changes nothing for us but hey you never know what is around the corner.

I picked Mum and Dad up from their round the world cruise of nearly 4 months as well.  I had to head out to White Bay in the city to get them.  It was lovely to see them again and catch up.

We have been doing the usual things like playgroup and speech therapy, school and work and busy weekends.

The big boy having fun at Cumberland State Forest

All my boys <3

Michael came second in the local Lego competition for his age group and won a cool Lego pack.  He built a Minecraft castle and we we so happy when he received second prize for it.  Happy boy!

I'm still filling out forms for "stuff" for the boys and for the family.  It is very time consuming but worth it if we can get some help (which so far we have been fairly lucky and have gotten most services that we have applied for).  Just a few more to go and then we will be finished!!!  Fingers crossed for the remaining xxxxxxxxx  (Just got word that we have been approved for all that we can apply for.  We got some, we didn't get some others but overall we are getting a lot of help for our family which is BRILLIANT!!)

Home made chocolate brownies and coffee - bliss!

Target has been having some big sales and I received an email regarding a further 50% off sale item clothes.  I got the kids some great clothes for next year (and this year).  Spent $218 but got 50% off so for $109 I got 20 items of clothing!  That is pretty good.

It has been beautiful weather but still quite cold at night.  Today I got the 3 beds stripped and washed plus a line full of clothes done.  I love sleeping on fresh sheets!

Bobbin Head - on my way from dropping the boys at family daycare

Bobbin Head

It has just started raining and apparently is going to rain for the next week.  The Central Coast had hail that looked like snow!  Lucky we still have lots of firewood as it might get chilly.

Can't believe the hail after weather like this:

A drive to Brooklyn

I got some lovely feedback from my supervisor at my new job.  I tell you, working part time is the best thing ever.  I don't think I ever want to go back to full time work.  I really love my new career and all the people I work with.  Nice bunch.

Planning for a day of paperwork and other stuff tomorrow.  It's the last day of school for the kids tomorrow and we are all looking forward to a break for a couple of weeks.

Planting some spinach for the chooks and a tomato for us.  Plus some sunflower seeds went in too!

Looking forward to walking more and some yummy dinners like this one now the warmer weather is here :-)

Hope all is good in your world too.